Jadon Burks; aka “The BUG” was diagnosed with the terminal disease Spinal Muscular Atrophy (SMA) on his 2 month Birthday. The news was overwhelming (to say the least) and while Jadon’s parents, Tony and Kristin, felt hopeless they were surrounded by incredible people, given good information, and became a part of an amazing “SMA family”. While they battle this disease daily they hope to help others facing this seemingly devastating diagnosis. Jadon’s Hope was formed to make an impact in the fight against SMA and to help families “Dance in the Rain”.
Jadon’s Hope Foundation strives to promote educational awareness and fund research efforts for Spinal Muscular Atrophy, the #1 genetic killer of infants under the age of two, while also providing support for families affected by terminal childhood diseases.
Newly Diagnosed? Are you a carrier?